Promoting positive development and fostering healthy family relationships across the life course

Publications

Autism Spectrum Disorder

Piro-Gambetti, B., Greenlee, J., Bolt, D., Litzelman, K., & Hartley, S.L. (in progress). Longitudinal pathways between parent depression and child mental health in families of Autistic children. Development and Psychopathology.

Greenlee, J., Lorang, E., Olson, R. H., Rodriquez, G., Yoon, D. M., & Hartley, S. L. Comparative Analysis of Electrodermal Activity Metrics and Their Association with Child Behavior in Autism Spectrum Disorder. Department of Psychology, Lafayette College.

Piro-Gambetti, B., Greenlee, J., Bolt, D., Papp, L.M., & Hartley, S.L. (2024). Parent-couple satisfaction, parent depression, and child mental health in families with Autistic Children. Frontiers in Psychiatry, 14, doi: 10.3389/fpsyt.2023.1306456 https://www.frontiersin.org/articles/10.3389/fpsyt.2023.1306456/full

Piro-Gambetti, B., Greenlee, J., Hickey, E.J., Putney, J.M., Lorang, E., & Hartley, S.L. (2022). Parental Depression Symptoms and Internalizing Mental Health Problems in Autistic Children. Journal of Autism and Developmental Disorders. doi: 1007/s10803-022-05518-x

Greenlee, J. L., Hickey, E., Stelter, C. R., Huynh, T., & Hartley, S. L. (2023). Profiles of the parenting experience in families of autistic children. https://doi.org/10.1177/13623613221147399

Piro-Gambetti, B., Rodriguez, G., Papp, L. M., Greenlee, J. L., & Hartley, S. L. (2023). Parent couple conflict and emotional and behavioral problems in youth with autism: Longitudinal investigation of bidirectional effects. Development and psychopathology, 35(1), 62–72. https://doi.org/10.1017/S0954579421000596

Greenlee, J., Piro-Gambetti, B., Putney, J., Papp, L., & Hartley, S.L. (2021). Marital satisfaction, parenting styles, and child outcomes in families with a child with autism spectrum disorder. Family Process. doi:1111/famp.12708

Greenlee, J., Stelter, C., Piro-Gambetti, B., & Hartley, S. L. (2021). Trajectories of dysregulation in children with autism spectrum disorder. Journal of Clinical Child and Adolescent Psychology. doi:1080/15374416.2021.1907752

Piro-Gambetti, B., Rodriguez, G., Papp, L., Greenlee, J., & Hartley, S.L. (2021). Parent couple conflict and emotional and behavioral problems in youth with autism: Longitudinal investigation of bidirectional effects. Development and Psychopathology. doi: 10.1017/S0954579421000596

Putney, J. M., Greenlee, J. L., & Hartley, S. L. (2021). Use and Benefit of Dyadic Coping for Couple Relationship Satisfaction in Parents of Children with Autism. Family process, 60(4), 1331–1346. https://doi.org/10.1111/famp.12617

Papp, L. M., Drastal, K. C., Lorang, E. K., & Hartley, S. L. (2020). Mother-father physiological synchrony during conflict and moderation by parenting challenges: Findings from parents of children with autism spectrum disorder. Families, systems & health : the journal of collaborative family healthcare, 38(4), 476–481. https://doi.org/10.1037/fsh0000525

Rodriguez, G., Drastal, K., & Hartley, S. L. (2021). Cross-lagged model of bullying victimization and mental health problems in children with autism in middle to older childhood. Autism : the international journal of research and practice, 25(1), 90–101. https://doi.org/10.1177/1362361320947513

Hickey, E. J., Bolt, D., Rodriguez, G., & Hartley, S. L. (2020). Bidirectional Relations between Parent Warmth and Criticism and the Symptoms and Behavior Problems of Children with Autism. Journal of abnormal child psychology, 48(6), 865–879. https://doi.org/10.1007/s10802-020-00628-5

Hickey, E.J., Nix, R., & Hartley, S.L. (2019). Family Emotional Climate and Children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 49(8):3244-3256. doi: 10.1007/s10803-019-04037-6.

Rodriguez, G., Hartley, S.L., & Bolt, D. (2019). Transactional relations between parenting stress and child autism symptoms and behavior problems. Journal of Autism and Developmental Disorders, 49(5):1887-1898. doi: 10.1007/s10803-018-3845-x.

Hartley, S.L., Hickey, E.J., & Rodriguez, G. (2019). Broader Autism Phenotype and Couple Interactions in Parents of Children with Autism. Autism: International Journal of Research and Practice, 23(8):2068-2079. doi: 10.1177/1362361319841312.

Goetz, G.L., Hartley, S.L., & Rodriguez, G. (2019). Actor-Partner Examination of Daily Parenting Stress and Perceived Couple Interactions in the Context of Child Autism. Journal of Family Psychology, 33(5):554-564. doi: 10.1037/fam0000527.

Hickey, E. J., Hartley, S. L., & Papp, L. (2020). Psychological Well-Being and Parent-Child Relationship Quality in Relation to Child Autism: An Actor-Partner Modeling Approach. Family process, 59(2), 636–650. https://doi.org/10.1111/famp.12432

Hartley, S.L., & Rodriguez, G. (2019). Self-care and raising a child with ASD. In B. Turns, J. Ramisch, and J. Whiting (Eds.) Systemically Treating Autism: A Guide to Empowering Families (pgs. 229- 237). New York, NY: Taylor & Francis.

Papp, L.M., & Hartley, S.L. (2018). Child-present and child-themed marital conflict in daily life of parents of children with and without autism spectrum disorder. Developmental Psychology, 55(1):148-156. doi: 10.1037/dev0000631.

Papp, L.M., & Hartley, S.L. (2018). Mothers’ and fathers’ prescription drug misuse in family contexts: Implications for the adjustment of parents of children with and without autism.  Addiction Research and Theory, 26(4):267-274. doi: 10.1080/16066359.2017.1351552.

Bussanich, P.M., Hartley, S.L., & Bolt, D. (2017). Parental attributions for positive behaviors in children with autism spectrum disorder. Journal of Intellectual Disability Research, 61, 643-655. doi:10.1111/jir.12 373.

Hickey, E. J., Dubois, L., & Hartley, S. L. (2017). Positive and Negative Social Exchanges Experienced by Fathers and Mothers of Children with Autism.  Autism : the international journal of research and practice, 22(4), 469–478. https://doi.org/10.1177/1362361316687117

Hartley, S. L., Papp, L. M., Mihaila, I., Bussanich, P. M., Goetz, G., & Hickey, E. J. (2017). Couple Conflict in Parents of Children with versus without Autism: Self-Reported and Observed Findings. Journal of Child and Family Studies, 26(2), 2152-2165. https://doi-org.ezproxy.library.wisc.edu/10.1007%2Fs10826-017-0737-1

Hartley, Sigan L., DaWalt, Leann Smith, & Schultz, Haley M. (2017). Daily Couple Experiences and Parent Affect in Families of Children with versus without Autism. Journal of Autism and Developmental Disorders, 47(6), 1645-1658.

Mihaila, I., & Hartley, S.L. (2016). Parental sleep quality and behavior problems of children with autismAutism: The International Journal Of Research And Practice, 22(3) 236–244.

Hartley, S.L., Papp, L.M., Blumenstock, S., Floyd, F., & Goetz, G. (2016). The effect of daily challenges in children with autism on parents’ couple problem-solving interactions. Journal of Family Psychology, 30(6):732-42. doi: 10.1037/fam0000219.

Hartley, S.L., Papp, L., & Bolt, D. (2016). Spillover of marital interactions and parenting stress in families of children with autism spectrum disorder. Journal of Clinical Child and Adolescent Psychology, 47(sup1):S88-S99. doi: 10.1080/15374416.2016.1152552.

Taylor, J., Burke, M.M., Smith, L.E., & Hartley, S.L. (2016). Families of adolescents and adults with intellectual disabilities. In R. Hodapp (Ed.). International review of research in developmental disabilities, Vol 41 (pp. 1-29). Philadelphia, PA: Elsevier.

Hartley, S. L., & Schultz, H. M. (2015). Support needs of fathers and mothers of children and adolescents with autism spectrum disorderJournal of Autism and Developmental Disorders45(6):1636-48. doi: 10.1007/s10803-014-2318-0.

Hartley, S. L., Mihaila, I., Otalor-Fadner, H., & Bussanich, P. M. (2014). Division of labor in families of children and adolescents with autism spectrum disorderFamily Relations63(5):627-638. https://doi.org/10.1111/fare.12093

Hartley, S. L., Schaidle, E. M., & Burnson, C. F. (2013). Parental attributions for the behavior problems of children and adolescents with autism spectrum disordersJournal of Developmental and Behavioral Pediatrics, 34, 651-660. https://doi.org/10.1097/01.DBP.0000437725.39459.a0

Hartley, S. L., Barker, E. T., Baker, J. K., Seltzer, M. M., & Greenberg, J. S. (2012). Marital satisfaction and life circumstances of grown children with autism across 7 yearsJournal of Family Psychology, 26, 688-697.

Hartley, S. L., Seltzer, M. M., Head, L., & Abbeduto, L. (2012). Psychological well-being in fathers of adolescents and young adults with Down syndrome, fragile X syndrome, and autismFamily Relations, 61, 327-342.

Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F. J., & Greenberg, J. S. (2011). Marital satisfaction and parenting experiences of mothers and fathers of adolescents and adults with autism. American Journal of Intellectual and Developmental Disabilities, 116, 81-95.

Barker, E. T., Hartley, S. L., Seltzer, M. M., Floyd, F. J., Greenberg, J. S., & Orsmond, G. I. (2011). Trajectories of emotional well-being in mothers of adolescents and adults with autism. Developmental Psychology, 47, 551-561.

Hartley, S. L., Seltzer, M. M., Barker, E. T., & Greenberg, J. S. (2011). Marital quality and families of children with developmental disabilities. In R. Hodapp, (Eds.) International Review of Research in Developmental Disabilities, Volume 41. Elsevier.

Hartley, S. L., & Seltzer, M. M. (2011). What forms of living are useful and available for adults with ASC? In S. Bolte, & J. Hallmayer (Eds.), Autism Spectrum Conditions: International Experts answer your Questions on Autism, Asperger syndrome and PDD-NOS. Hogrefe.

Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F. J., Orsmond, G. I., Greenberg, J. S. et al. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology, 24, 449-457.

Hartley, S. L., & Sikora, D. S. (2010). Detecting autism spectrum disorder in children with intellectual disability: Which DSM-IV-TR criteria are most useful? Focus on Autism and Other Developmental Disabilities, 25, 85-97.

Hartley, S. L., & Sikora, D. S. (2009). Sex differences in autism spectrum disorders: An examination of developmental functioning, autistic symptoms and coexisting behavior problems in toddlersJournal of Autism and Developmental Disorders, 39, 1715-1722.

Hartley, S. L. & Sikora, D. S. (2009). Which DSM-IV-TR criteria best differentiate high- functioning autism spectrum disorder from ADHD and anxiety disorders in older children? Autism: The International Journal of Research and Practice, 13, 485-509.

Hartley, S. L., Sikora, D. S., & McCoy, R. (2008). Prevalence and risk factors of maladaptive behaviors in young children with Autistic DisorderJournal of Intellectual Disability Research, 52, 819-829.

Hartley, S. L., Buckendorf, B., Haines, K., Hall, T., & Sikora, D. S. (2008). The Oral and Written Language Scales: Is it useful for older children with autism spectrum disorder? Research in Autism Spectrum Disorders2, 137-146.

Sikora, D. S., Hall, T., Hartley, S. L., Gerrard-Morris, A., & Cagel, S. (2008). Does parent report of behavior differ across Autism Diagnostic and Observation Schedule-Generic Classifications: Analysis of scores from the Child Behavior Checklist and Gilliam Autism Rating Scale. Journal of Autism and Developmental Disabilities, 38, 440-448.

Sikora, D. S., Hartley, S. L., McCoy, R., Gerrard-Morris, A., & Dill, K. (2008). The performance of children with mental health disorders on the ADOS-G: A question of diagnostic utilityResearch in Autism Spectrum Disorders, 2, 188-197.

Down Syndrome

Wisch J.K., McKay N.S. , Boerwinkle A.H., Kennedy J., Flores S., Handen B.L., Christian B.T., Head E., Mapstone M., Rafii M.S., O’Bryant S.E., Price J.C., Laymon C.M., Krinsky-McHale S.J., Lai F., Diana Rosas H., Hartley S.L., et al.; Comparison of tau spread in people with Down syndrome versus autosomal-dominant Alzheimer’s disease: a cross-sectional study, The Lancet Neurology, Volume 23, Issue 5, 2024, 500-510, ISSN 1474-4422, https://doi.org/10.1016/S1474-4422(24)00084-X.

Schworer E.K.Handen B.L.Petersen M., et al.; the Alzheimer Biomarker Consortium-Down SyndromeCognitive and functional performance and plasma biomarkers of early Alzheimer’s disease in Down syndromeAlzheimer’s Dement202416:e12582. https://doi.org/10.1002/dad2.12582

Hillerstrom, H., Fisher, R., Janicki, M. P., Chicoine, B., Christian, B. T., Esbensen, A., Esralew, L., Fortea, J., Hartley, S., Hassenstab, J., Keller, S. M., Krinsky-McHale, S., Lai, F., Levin, J., McCarron, M., McDade, E., Rebillat, A. S., Rosas, H. D., Silverman, W., Strydom, A., … Zetterberg, H. (2024). Adapting prescribing criteria for amyloid-targeted antibodies for adults with Down syndrome. Alzheimer’s & Dementia, doi: 10.1002/alz.13778. https://doi.org/10.1002/alz.13778

Piro-Gambetti, B., Schworer, E., Handen, B., Glukhovskaya, M., & Hartley, S.L. (2023). Does employment complexity promote healthy cognitive aging in Down syndrome? Journal of Intellectual Disabilities. doi:1177/17446295231169379

Hartley, S.L., Fleming, V.L., Schworer, E.K.,Peven, J.C., Handen, B.L., Krinsky-McHale, S.J., Hom, C.L., Lee, A., Tudoascu, D.L., Ances, B., Zaman, S., Mapstone, M., Head, E., Zammit, M., Pulsifer, M., Schupf, I., Silverman, W., Lai, F., Rosas, D., Lee, J., Klunk, W., Cohen, A., Laymon, C., Christian, B.T., & Alzheimer’s Biomarker Consortium-Down Syndrome. (2023). Timing of Alzheimer’s disease by intellectual disability level in Down syndrome. Journal of Alzheimer’s Disease, 95(1), 213–225. https://doi.org/10.3233/JAD-230200

Hartley, S.L., Handen, B.L., Tudoascu, D.L., Lee, L., Cohen, A., Schworer, E.K.,Peven, J.C., Zammit, M., Klunk, W., Laymon, C., Zaman, S., Ances, B., Preboske, G., & Christian, B.T. (2023). AT(N) biomarker profiles and Alzheimer’s disease symptomology in Down syndrome. Alzheimer’s & Dementia. https://doi.org/10.1002/alz.13446

Fleming, V., Hom, C. L., Clare, I. C., Hurd-Thomas, S. L., Krinsky-McHale, S., Handen, B., & Hartley, S. L. (2022). Cognitive outcome measures for tracking Alzheimer’s disease in Down syndrome. International Review of Research in Developmental Disabilities, 62, 227-263. https://doi.org/10.1016/bs.irrdd.2022.05.006

Hartley, S. L., Fleming, V., Piro-Gambetti, B., Cohen, A., Ances, B. M., Yassa, M. A., Brickman, A. M., Handen, B. L., Head, E., Mapstone, M., Christian, B. T., Lott, I. T., Doran, E., Zaman, S., Krinsky-McHale, S., Schmitt, F. A., Hom, C., Schupf, N., & ABC-DS Group (2022). Impact of the COVID 19 pandemic on daily life, mood, and behavior of adults with Down syndrome. Disability and health journal, 101278. https://doi.org/10.1016/j.dhjo.2022.101278

Hartley, S.L., Handen, B.L., Tudorascu, D.L., Lee, L., Cohen, A., Piro-Gambetti, B., Zammit, M., Klunk, W., Laymon, S., Ances, B., Sabbagh, M., & Christian, B.T. (2022). Role of tau deposition in early cognitive decline in Down syndrome. Alzheimer’s & Dementia: Diagnosis, Assessment & Disease Monitoring, 14(1). doi:1002/dad2.12256

Peven, J.C., Handen, B.L., Laymon, C.M., Fleming, V., Piro-Gambetti, B., Christian, B.T., Klunk, W., Cohen, A.D., Okonkwo, O., & Hartley, S.L. (2022). Physical activity, memory function, and hippocampal volume in adults with Down syndrome. Frontiers in Integrative Neuroscience, 116. doi:3389/fnint.2022.919711

Fleming, V., Hom, C., Clare, I., Krinsky-McHale, S., Handen, B., & Hartley, S.L. (2022) Cognitive outcomes for Alzheimer’s disease in Down syndrome.International Review of Research in Developmental Disabilities. https://doi.org/10.1016/bs.irrdd.2022.05.006

Fleming, V., Helsel, B.C., Ptomey, L.T., Rosas, D.H., Handen, B., Laymon, C., Christian, B.T., Head, E., Mapstone, M., Lai, F., Krinsky-McHale, S., Zaman, S., Ances, B.M., Lee, J.H., Hartley, S.L., & ABC-DS (2022) Weight loss and Alzheimer’s disease in Down syndrome. Journal of Alzheimer’s Disease. https://doi.org/10.3233/JAD-220865

Fleming, V., Piro‐Gambetti, B., Handen, B., Christian, B. T., Cohen, A., Tudorascu, D., … & Hartley, S. L. (2022). Physical activity and physical and mental health in middle‐aged adults with Down syndrome. Journal of Policy and Practice in Intellectual Disabilities. https://doi.org/10.1111/jppi.12434

Kristensen, K., Lorenz, K. M., Zhou, X., Piro-Gambetti, B., Hartley, S. L., Godar, S. P., Diel, S., Neubauer, E., & Litovsky, R. Y. (2022). Language and executive functioning in young adults with Down syndrome. Journal of intellectual disability research, 66(1-2), 151–161. https://doi.org/10.1111/jir.12868

Hartley, S. L., Fleming, V., Piro-Gambetti, B., Cohen, A., Ances, B. M., Yassa, M. A., Brickman, A. M., Handen, B. L., Head, E., Mapstone, M., Christian, B. T., Lott, I. T., Doran, E., Zaman, S., Krinsky-McHale, S., Schmitt, F. A., Hom, C., Schupf, N., & ABC-DS Group (2022). Impact of the COVID-19 pandemic on daily life, mood, and behavior of adults with Down syndrome. Disability and health journal, 15(3), 101278. https://doi.org/10.1016/j.dhjo.2022.101278

Fortea, J., Zaman, S. H., Hartley, S., Rafii, M. S., Head, E., & Carmona-Iragui, M. (2021). Alzheimer’s disease associated with Down syndrome: A genetic form of dementiaThe Lancet Neurology20(11), 930-942. https://doi.org/10.1016/S1474-4422(21)00245-3

Fleming, V., Piro-Gambetti, B., Patrick, A., Zammit, M., Alexander, A., Christian, B. T., Handen, B., Cohen, A., Klunk, W., Laymon, C., Ances, B. M., Plante, D. T., Okonkwo, O., & Hartley, S. L. (2021). Physical activity and cognitive and imaging biomarkers of Alzheimer’s disease in down syndrome. Neurobiology of aging, 107, 118–127. https://doi.org/10.1016/j.neurobiolaging.2021.07.016

Hartley, S.L., Handen, B.L., Devenny, D, Tudorasu, D., Piro-Gambetti, B., Zammit, M.D., Laymon, C. M., Klunk, W., Zaman, S., Cohen, A., & Christian, B.T. (2020). Cognitive indicators of transition to preclinical and prodromal stages of Alzheimer’s disease in Down syndromeAlzheimer’s & dementia (Amsterdam, Netherlands), 12(1), e12096. https://doi.org/10.1002/dad2.12096

Handen, B.L, Lott, I.T., Christian, B.T., O’Bryant, S., Mapstone, M., Fagan, A.M., Lee, J.H., Tudorascu, D., Want, M-C, Head, E., Klunk, W., Ances, B., Lai, Fl., Zaman, S., Krinsky-McHale, S., Brickman, A.M., Rosas, H.D., Cohen, A., Andrews, H., Hartley, S.L., Silverman, W., & Alzheimer’s Biomarker Consortium-Down syndrome (ABC-DS) (2020). The Alzheimer’s Biomarker Consortium-Down Syndrome: Rationale and methodology. Alzheimer’s & dementia (Amsterdam, Netherlands), 12(1), e12065. https://doi.org/10.1002/dad2.12065

Hartley, S.L. & Esbensen, A. (2020). Sleep in aging adults with Down syndrome and its associations with Alzheimer’s Disease.  In E. Head and I. Lott (Eds.), The Neurobiology of Aging and Alzheimer’s disease in Down syndrome (pg. 45-62). New York, New York: Elsevier.

Snyder, H.M., Bain, L.J., Brickman, A.M., Carrillo, M.C., Esbensen, A.J., Espinosa, J.M., Fernandez, F., Fortea, J., Hartley, S.L., …Rafii, M.S. (2020). Further understanding the connection between Alzheimer’s disease and Down syndrome. Alzheimer’s and Dementia: Diagnosis, Assessment, and Disease Monitoring, 16, 1065-1077. doi: 10.1002/alz.12112

Petersen, M. E., Rafii, M. S., Zhang, F., Hall, J., Julovich, D., Ances, B. M., Schupf, N., Krinsky-McHale, S. J., Mapstone, M., Silverman, W., Lott, I., Klunk, W., Head, E., Christian, B., Foroud, T., Lai, F., Diana Rosas, H., Zaman, S., Wang, M. C., Tycko, B., … Alzheimer’s Biomarker Consortium –Down Syndrome (ABC-DS) (2021). Plasma Total-Tau and Neurofilament Light Chain as Diagnostic Biomarkers of Alzheimer’s Disease Dementia and Mild Cognitive Impairment in Adults with Down Syndrome. Journal of Alzheimer’s disease : JAD, 79(2), 671–681. https://doi.org/10.3233/JAD-201167

 Zammit, M.D., Laymon, C., Tudorascu, D., Hartley, S.L., Johnson, S.C., Mathis, C.A., Klunk, W.E., Handen, B.L. Cohen, A.D., & Christian, B.T. (in press). Early changes in glucose metabolism are similar between Down syndrome and sporadic Alzheimer’s disease. Alzheimer’s and Dementia: Diagnosis, Assessment and Disease Monitoring.

Lorang, E., Hartley, S., and Sterling, A. (2020) Physiological arousal and observed behaviour in parent–child interactions involving young children with Down syndrome. Journal of Intellectual Disability Research, 64(6):426-433. doi: https://doi.org/10.1111/jir.12714.

Mihaila, I., Handen, B. L., Christian, B. T., & Hartley, S. L. (2020). Leisure activity in middle‐aged adults with Down syndrome: Initiators, social partners, settings and barriers. Journal of applied research in intellectual disabilities : JARID, 33(5), 865–875. https://doi.org/10.1111/jar.12706

Cody, K. A., Piro-Gambetti, B., Zammit, M. D., Christian, B. T., Handen, B. L., Klunk, W. E., Zaman, S., Johnson, S. C., Plante, D. T., Hartley, S. L. (2020). Association of sleep with cognition and β-amyloid accumulation in adults with Down syndromeNeurobiology of aging, 93, 44–51. https://doi.org/10.1016/j.neurobiolaging.2020.04.018.

Rubenstein, E., Hartley, S., & Bishop, L. (2019). Epidemiology of dementia and Alzheimer disease in individuals with down syndrome. JAMA Neurology, 77(2):262‐264. doi:10.1001/jamaneurol.2019.3666

Mihaila,I., Handen, B., Christian, B.T., Lao, P.J., Cody, K., Klunk, W.E., Tudorascu, D.L., Cohen, A.D., Okonkwo, O., & Hartley, S.L. (2019). Leisure activity, brain β-amyloid, and episodic memory in adults with Down syndrome. Developmental Neurobiology, 79(7):738-749. doi: 10.1002/dneu.22677.

Tudorascu, D.L., Anderson, S.J., Minhas, D.S., Yu, Z., Comer, D., Lao, P., Hartley, S.L., …Christian, B.T. (2018). Comparison of longitudinal Aβ in non-demented elderly and Down syndrome. Neurobiology of Aging, 73:171-176. doi: 10.1016/j.neurobiolaging.2018.09.030.

Lao, P.J., Handen, B.L., Betthauser, T.J., Mihaila, I., Hartley, S.L., Cohen, A.D., et al…Christian, B.T. (2017). Longitudinal changes in amyloid PET and volumetric MRI in the non-demented Down syndrome population. Alzheimer’s and Dementia: Diagnosis, Assessment, and Disease Monitoring, 9, 2-9. doi:  10.1016/j.dadm.2017.05.001

Hartley SL, Handen BL, Devenny D, Mihaila I, Hardison R, Lao PJ, Klunk WE, Bulova P, Johnson SC, Christian BT. (2017). Cognitive decline and brain amyloid-β accumulation across 3 years in adults with Down syndrome. Neurobiololgy of Aging, 58:68-76. doi: 10.1016/j.neurobiolaging.2017.05.019.

Mihaila, I., Hartley, S.L., Handen, B. L., Bulova, P.D., Tumuluru, R.B., Devenny, D.A., et al. (2016). Leisure activity and caregiver involvement in middle-aged and older adults with Down syndrome. Intellectual and Developmental Disabilities, 55, 97-109. doi: 10.1352/1934-9556-55.2.97.

Esbensen, A.J., Hooper, S.R., Fidler, D., Hartley, S.L., Edgin,J., d’Ardhuy, X.L. et al. (2017). Outcome measures for Clinical Trials in Down syndrome. American Journal on Intellectual and Developmental Disabilities, 122, 247-281. doi: 10.1352/1944-7558-122.3.247.

Lao, P.J., Betthauser, T.J., Hilmer, A.T., Price, J., Klunk, W., Mihaila, I.,  Higgins, A.T., Bulova, P.D., Hartley, S.L. et al. (2016). The effects of normal aging on amyloid-β deposition in a population of nondemented adults with Down syndrome as imaged by [11C] PIBAlzheimer’s and Dementia, 12(4):380-90. doi: 10.1016/j.jalz.2015.05.013.

Hartley, S. L., Handen, B., Devenny, D. T., Christian, B. T., Hardison, R., Mihaila, I., Price, J. C., Cohen, A. D., Klunk, W. E., Mailick, M., & Johnson, S. (2014). Cognitive functioning in relation to the accumulation of brain β-amyloid in healthy adults with Down syndromeBrain137(Pt 9):2556-63. doi: 10.1093/brain/awu173.

MacLean, W. E., Jr., & Hartley, S. L. (2005). Down syndrome. In N. J. Salkind (Ed.), Encyclopedia of Human Development (pp. 309-321). Oaks, CA: Sage.

Fragile X Syndrome

Hartley, S.L., DaWalt, L., Hong, J., Greenberg, J., & Mailick, M. (2019). Positive Emotional Support in Premutation Carrier Mothers of Adolescents and Adults with Fragile X Syndrome: Gene by Environment Interactions. American journal on intellectual and developmental disabilities, 124(5), 411–426. https://doi.org/10.1352/1944-7558-124.5.411

Hartley, S.L., Wheeler, A., Mailick, M.R., Raspa, M., Mihaila, I., Bishop, E., & Bailey, D. (2015). Autism symptoms across adulthood in men with Fragile X syndrome: Findings from a Cross-sectional studyJournal of Autism and Developmental Disorders, 45(11):3668-79. doi: 10.1007/s10803-015-2513-7.

Hartley, S. L., Seltzer, M. M., Hong, J., Greenberg, J. S., Almeida, D., Coe, C., & Abbeduto, L. (2012). Cortisol response to behavior problems in FMR1 premutation mothers of adolescents and adults with fragile X syndrome: A diathesis-stress modelInternational Journal of Behavioral Development36, 53-61.

Hartley, S. L., Seltzer, M. M., Raspa, M., Olmsted, M. G., Bishop, E. E., & Bailey, D. B. (2011). Exploring the adult life for men and women with fragile X syndrome: Results from a national survey. American Journal of Intellectual and Developmental Disabilities, 116, 16-35.

Mental Health and Intellectural and Developmental Disability

Hickey, E.J., & Hartley, S.L. (2016). Conservatorship. In E. Braatan and B. Willoughby (Eds.), Encyclopedia of intellectual and developmental disorders. Sage Publications.

Hartley, S. L., Esbensen, A. J., Shalev, R ., Vincent, L., Mihaila, I. , & Bussanich, P. ( 2015). Cognitive behavioral therapy for depressed adults with mild intellectual disability: A Pilot StudyJournal of Mental Health Research in Intellectual Disabilities, 8, 72-97.

Milevicuite, I., & Hartley, S.L. (2015) Self-reported versus informant-reported depressive symptoms in adults with mild intellectual disabilityJournal of Intellectual Disability Research59(2):158-69. doi: 10.1111/jir.12075.

Esbensen, A. J., & Hartley, S. L. (2013). Mood disorders. In J. L. Taylor, W. R. Lindsay, R. Hastings, & C. Hatton (Eds.), Psychological Therapies for Adult with Intellectual Disabilities. John Wiley & Sons, Ltd.

Hartley, S. L., & MacLean, W. E., Jr. (2006). A review of the reliability and validity of Likert-type scales for people with intellectual disabilityJournal of Intellectual Disability Research, 50, 813-827.

Hartley, S. L., & MacLean, W. E., Jr. (2009). Depression in adults with mild intellectual disability: Role of stress, attributions, and copingAmerican Journal on Intellectual and Developmental Disabilities, 114, 147-160.

Hartley, S. L., & MacLean, W. E., Jr. (2009). Stressful social interactions experienced by adults with mild intellectual disabilityAmerican Journal on Intellectual and Developmental Disabilities, 114, 71-84.

Hartley, S. L., & Beirgenhon, D. (2009). Nonverbal social skills of adults with mild intellectual disability diagnosed with depressionJournal of Mental Health Research in Intellectual Disabilities, 2, 11-28.

Hartley, S. L., Lickel Hayes, A., & MacLean, W. E., Jr. (2008). Reassurance-seeking and depression in adults with mild intellectual disabilityJournal of Intellectual Disability Research, 52, 917-929.

Hartley, S. L., & MacLean, W. E., Jr. (2008). Coping strategies of adults with mild intellectual disability for stressful social interactions. Journal of Mental Health Research in Developmental Disabilities, 1, 109-127.

Hartley, S. L., Horrell, S. V., & MacLean, W. E., Jr. (2007). Science to practice in intellectual disability: The role of empirically supported treatments. In J. W. Jacobson, J. A. Mulick, & J. Rojahn (Eds), Handbook of Intellectual and Developmental Disabilities (pp. 425-444). Norwell, MA: Kluwer Academic/Plenum.

Hartley, S. L., & MacLean, W. E., Jr. (2007). Staff-averse challenging behavior in older adults with intellectual disabilitiesJournal of Applied Research in Intellectual Disabilities, 20, 519-528.

Hartley, S. L., & MacLean, W. E., Jr. (2006). A review of the reliability and validity of Likert-type scales for people with intellectual disabilityJournal of Intellectual Disability Research, 50, 813-827.

Hartley, S. L., & MacLean, W. E. Jr. (2005). Perceptions of stress and coping strategies among adults with mild mental retardation: Insight into psychological distressAmerican Journal on Mental Retardation110, 285-297.

Hartley, S. L., MacLean, W. E., Jr., Butler, M., Thompson, T. & Zarcone, J. (2005). Maladaptive behaviors and risk factors among the genetic subtypes of Prader-Willi syndrome. American Journal of Medical Genetics, 136, 140-145.

Other

Rice, G. M., Raca, G., Jakielski, K. J., Laffin, J. J., Iyama-Kurtycz, C. M., Hartley, S. L. et al. (2012). Phenotype of FOXP2 haploinsufficiency in a mother and sonAmerican Journal of Medical Genetics, Part A 158A:174–181.

Amodio, D. M., Harmon-Jones, E., Devine, P. G., Curtin, J. J., Hartley, S. L., & Covert, A. E. (2004). Neural signals for the detection of unintentional race biasPsychological Science, 15, 88-93.